Thank you for participating in this study! We appreciate your time and anticipate that this research will help us define palliative care practices nationally, with the goal of improving palliative care for pediatric patients nationwide. If you choose to participate in this study, you are consenting to participation in this research project.

This study is open to all members of your organization, regardless of their role on the health care team.

For the purposes of this study, please consider the following definitions:

  • Palliative care: an approach that improves the quality of life of patients and their families facing the problems associated with life-threatening illness, through the prevention and relief of suffering by means of early identifications and impeccable assessment and treatment of pain and other problems, physical, psychosocial and spiritual (WHO Definition)
  • Hospice care: type and philosophy of care that focuses on the palliation of a terminally ill or seriously ill patient's pain and symptoms, and attending to their emotional and spiritual needs

If you have any questions, you may email the study chairs, Dr. Rina Meyer and Dr. Laura Czulada, at or

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